Friday, October 13, 2006

29 weeks & 2 appt updates

Psalm 130:5

I wait for the Lord, my soul waits, and in His word I put my hope.

No news is good news, right? That's kinda how I feel right now after a very long day (Thursday). I feel hopeful, yet very down, and somewhat alone. I guess it's the toll of 10 weeks of bedrest and concern for Owen.

Appt #1 Thursday: The geneticist was very kind and took lots of time with us. They were very thorough and he seemed very certain of the few things he could tell regarding Owen. He did not have the concern the Perinatalogist had about Owen's head. He was able to point out all the suture lines in Owen's skull, which were open, and not fused which is good. (Sutures are the openings in the skull baby's must have to be able to be born and have a moldable head-plus, they give us room for our brains to grow and then they gradually close thru childhood.)

He confirmed that all of Owen's limbs are proportionately small and his chest is small also-a bit smaller than his limbs. Which leads him to best guess that Owen does have a less common type of skeletal or bone dysplasia (also known as dwarfism). The biggest concern with his chest size is that his respiratory system wouldn't be strong enough to support himself and he may need assistance with a ventilator. He recommended further tests (to aide in diagnosis) but they are expensive and may not tell us anything (and they take 4 weeks to run). So we are checking with our insurance to see if they will cover the tests.

Owen is also breech which concerns me and is uncomfortable to carry with his head in my ribs and feet dancing on my bladder. Next up? I have to return for a follow up ultrasound in 3 weeks, mostly just to monitor growth and assess for any further complications that may arise between now and then. My bedrest with very light activity is going ok, but frankly, I have no endurance and my muscles are very weak so being up is painful and exhausting.

Appt #2 Friday: Dr. Sinnott was great as usual. He's my regular OB and it was just the routine check up. He did decide to do a round of shots called betamethasone, which is 2 shots of steroids given a day apart to help Owen's lung tissue further develop in the event that he would deliver early. Dr. Sinnott did say if Owen doesn't turn from breech to head down, that I would have to have a c-section, which isn't such a surprise but I don't want one and was hopeful that there may be some options to try first, but no luck. No other changes in my care. Return check-up in 2 weeks is what's up next.

By the way, I made it to 29 weeks as of this past Tuesday. Only 6 1/2 weeks to go!

On a positive note, Jacob is coming home to us next weekend assuming no catastrophes occur in the meantime;-) I am hopeful that he will be a good boy and not too much of a handful for me to take care of during the day.

Please continue to be praying for us... Specifically:

~For Owen's health, his growth, and that he would turn head down.
~Also that our insurance would cover all the tests and care in the future and that we've already had.
~My health is a continual concern as well with the blood pressure and preterm labor that is possible.
~That Jacob would be able to come home next weekend, that he would have a safe trip, and that I would be able to care for him.
~More days have been hard than easy for me lately. As I said above I really feel very down and alone, and I am not sleeping well-so please continue to pray that I remain hopeful and trusting in God.

Nothing is impossible with God...He loves Owen more than even I do and will be faithful in His care for us.

2 comments:

Karen H said...

So glad for the update. I've been praying and wondering how the appointments went, but didn't want to call and bother you.

Much to pray about still, but the news seems more hopeful than before.

But now, this is what the Lord says--He who created you, He who formed you: "Fear not, for I have redeemed you; I have called you by name; you are mine. When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned, the flames will not set you ablaze. For I am the Lord, your God, the Holy One of Israel, your Savior."
Is 43: 1-3

Troy & Sherry said...

Renay -
Glad things are going better! We have been praying for you and thinking about you. If you need anything let us know.
We love you guys!